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TSFC Launches New Website
We have recently unveiled our new website and if you haven’t already, we invite you to drop by and take a look at and let
us know what you think. You will find a fresh look to our usual content and a few new surprises. We are still fine tuning our online
ordering and donation pages but we expect these options to be available in the very near future. In the meantime we are still available by
phone. A special thank you to our former Webmaster, Bob Rogers for his immeasurable time, commitment and dedication.
Member Survey
We are asking for input from our membership in creating a National Advocacy Strategy. What does advocacy mean to you and what can
the TSFC do to better meet your needs in this area? These are some of the questions that we are hoping to answer with our National
Advocacy Strategy Survey. Please take a few minutes to fill out the on-line survey at:
Deadline for submission is June 27, 2007
.
National Volunteer Awards
Help us celebrate the outstanding accomplishments and contributions made by those that have touched your life in a special way. Our
national awards program acknowledes those who have demonstrated excellence, courage and exceptional dedication to make our commu-
nities a better place to live. You may submit a nomination form at any time throughout the year. The submission deadline for the 2006
service year is August 1, 2007. Awards will be presented at our annual luncheon held this year on September 28, 2007 at the Brock Plaza
Hotel in Niagara Falls, ON.
Making Waves: Conference 2007
Plans are well underway for Conference 2007 which takes place in Niagara Falls, ON September 27th to 29th. We will be offering
programs for children and teens, young adults, couples, adults, parents, educators and anyone with an interest in TS. If you have never at-
tended one of our conferences we urge you to consider joining us this year where your family will have the opportunity to learn from
experts in the field of TS and other neurological disorders and gain support from others who are going through the same experiences.
You can find more information and registration forms at
Sleep Study
Dr. Robyn Stephens, Dr. Paul Sandor and Dr. Colin Shapiro are looking for individuals to participate in a new study that will look at
how the medication Clonidine affects sleep and aggressive behaviour in children with Tourette Syndrome and ADHD. This study has
received ethical clearance from the TSFC’s Medical Advisory Board. The research team is looking for 32 children aged nine to 14 who
have TS and ADHD. Travel expenses will be covered and participants will receive a formal consultation with a sleep physician and a
report of their sleep patterns. For more information contact Dr. Stephens at (416) 368-4896 ext. 2260.
Disclaimer: Newsflash is a member-only service of the Tourette Syndrome Foundation of Canada (TSFC). The material provided is for information purposesonly. The mention of specific publications, radio or television broadcasts, websites, medication or treatment options should not be construed as an endorsementby the TSFC. Any treatment options should be discussed with a qualified professional.
2007 Tourette Syndrome Foundation of Canada

Source: http://www.tourette.ca/downloads/TwitchTimes-070601.pdf

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Informatie voor deelnemers aan het onderzoek “Losartan en Marfan syndroom” Coördinerend onderzoeker: Dr. M. Groenink, cardioloog AMC Amsterdam Artsonderzoekers: F. S. van Dijk, artsonderzoeker VUmc Amsterdam T. Radonic, artsonderzoeker AMC Amsterdam Academisch Medisch Centrum Meibergdreef 9 1105 AZ Amsterdam VU Medisch Centrum Amsterdam De Boelelaan 1117 1081 HV Ams

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